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RESOURCES |
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American Academy of Ophthalmology |
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Association for Macular Diseases Offers education and information on macular disease through seminars, newsletters, and a hotline. Offers counseling to patients and their families. |
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EyeSmart |
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(The) Foundation Fighting Blindness Acts as a clearinghouse and distributor of self-help program information. Sponsors research on the cause, prevention, and treatment of retinitis pigmentosa, Usher's syndrome, macular degeneration, and other retinal degenerative conditions. Conducts education programs for those affected by the disorders as well as professionals and the general public. Coordinates a national information and referral service and the Retinal Donor program. Publishes newsletters and other publications. For additional information, you may also wish to contact a local library. |
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National Eye Institute Conducts and supports research on eye diseases and vision disorders. Offers free publications for the general public and patients. |
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Macular Degeneration Partnership 8733 Beverly Boulevard, Suite 201 Los Angeles, CA 90048-1844 1-888-430-9898 310-423-6455 |
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National Marfan Foundation Disseminates information about Marfan syndrome, a genetic disorder of the connective tissues in which dislocated lenses, cataract, and retinal detachment are ocular symptoms. Provides a communication network for patients and their family members. Supports and encourages research. Publishes The Marfan Syndrome, a comprehensive booklet on the disease, and A Guide for Eye Care Professionals. |
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American Association for Pediatric Ophthalmology Dedicated to ensuring quality medical and surgical eye care of children and adults with strabismus. Provides information on common eye problems including strabismus, amblyopia, retinopathy of prematurity, conjunctivitis, and learning disabilities. Offers a website tool to help people find pediatic ophthalmologists in their local areas. |
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Association for Retinopathy of Prematurity and Dedicated to eliminating the problems of low vision and blindness in children caused by premature birth and retinal disease, by funding clinical research to understand, treat, and prevent retinopathy of prematurity (ROP) and related retinal diseases. Funds innovative work on the development of new low vision devices, teaching techniques and services for children who are visually impaired and their families.
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